Adam is teaching us about acceptance, and about letting go. There is absolutely nothing we can do to change his condition or the prognosis. It is out of our hands. That is a tough pill to swallow. Medicine has come so far, but there are still things that cannot be cured or fixed. Every parents develops dreams for their unborn children - things you hope for them, want for them. We create a vision of what life will be like once the baby arrives. It is hard to accept that all the dreams I had for my twin boys will not happen. There won't be bunk beds in their room, I won't be watching them play in the backyard together. Everything has changed. It's hard to let go of all that, and to accept our new reality. It helps to remember that God has a plan. He does not make mistakes. We have to trust that, and surrender to what he has in store for us.
On a lighter note, Luke's first well check went great. His weight at discharge was 5 lbs. 14 oz. Now he's up to 6 lbs. 2 oz. The doctor was really happy with that, and said his skin color looks great, his umbilical cord is healing well, and so is his circumcision. He's an alert, calm, happy, healthy baby! We are so thankful for that!
One of my friends sent me a quote that I love and wanted to share (by Victor Hugo):
"Have the courage for the greatest sorrows of life and patience for the small ones,
and when you have laboriously accomplished your daily tasks, try to sleep in peace.
God is awake."